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High Prices For Orphan Drugs Strain Families And Insurers

January 17, 2017

A pale boy with enormous eyes, Luke frequently ran high fevers, tired easily and was skinny all over, except his belly stuck out like a bowling ball. David Kronn, M.D., associate professor of pediatrics, said Luke's condition was "quite severe" and he needed help fast. Luke immediately began treatment, but the family said it spent months uncertain whether its health insurer, Oxford Health Plans, which is owned by UnitedHealthcare, would cover the drug. The drug is made by Sanofi Genzyme and costs $6,356.69 for each treatment, the Whitbecks' paperwork shows.

Faculty Member: David Kronn, M.D., associate professor of pediatrics

Source: NPR